White Paper and Research

FPS is the ONLY Patient RESPITE support care entity in oncology with reported patient and caregiver Family Health Outcomes and Patient Outcome Measures.

When you invest in FPS and our families, you get scientifically supported results. For the past 18 years, we have chronicled the improved outcomes of oncology patients and their families. The For Pete Sake Patient Registry is a longitudinal study that measures the results of the care provided.

Respite Changes Lives

Our Research and Outcomes

Healthcare Professional Outcomes

Annually, hundreds of our Oncology Professionals report outcome data to measure improvement in patient/family ability to cope with cancer. Surveyed both pre and post respite in the clinical setting, these Nominators report on average an increase in coping as follows:

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Increase in caregiver's coping ability
0 %
Increase in patient's coping ability
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Increase in child's coping ability

(data represents over 300 oncology healthcare professional surveys since 2019. Click to see a full outcome presentation here.)

White Paper

Under the direction of Dr. Natalie Hamrick, Research Psychologist, FPS conducted a five-year study on the impact of respite on family health (see below for FPS Family Health Pillars) This is the first community-based family respite program to report on efficacy in meeting objectives.  The conclusions of this study are as follows:

  • Cancer survivors improved on spousal communication, family hardiness, joviality and coping efficacy.
  • Caregivers improved on spousal communication, children communication, joviality and coping efficacy.
  • Children experienced increased joviality.

These results suggest that investing in resources in these families may help improve relationships and facilitate efforts to stay engaged in the cancer battle. For a full copy of the results and accompanying white paper, please click here.

APOS

Dr. Hamrick presented the five years of research data mentioned above at the APOS (American Psychosocial Oncological Society) 19th Annual Conference in a presentation, Cancer Families’ Intentional Respite Experience, Family Dynamics and Positive Outlook

A link to the presentation can be found here.

ASCO

FPS respite data and outcomes have been recognized by the American Society of Clinical Oncology (ASCO) and published in a 2020 abstract, titled Individual and Community Respite as Supportive care for Adult Cancer Patients, their caregivers and their families. 

Read our abstract here!

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The Family Health Model

Cancer touches every aspect of a family’s life.

Ensuring a family’s overall health is strong during the cancer journey is critical to coping with this disease in the best way possible.

Respite has therapeutic benefits that span from emotional to physical to psychosocial, with lots in between! And these benefits are not just for the patient, but also the caregiver and children of the patient.

The FPS Family Health Model outlines the impact of respite on family health and moreover, no family has a financial burden to experience respite. While on Travel Respite at Woodloch, families participate in carefully sourced activities that address our Family Health Pillars, including meditation and chair yoga, journaling with prompts, art therapy, nutrition and meals, nature walks and team building activities. The FPS Staycation Respite includes materials that address the areas of health outlined below within the confines of a family’s home. Together we make love greater than cancer!

Family Health

Strengthen family unit   |   Improve communications   |   Promote connectedness   |   Inspire team mentality

Mental
Health

  • Reduce anxiety and stress
  • Boost coping skills
  • Find inspiration and encouragement
  • Build resilience and future treatment

Physical
Health

  • Promote movement and exercise
  • Stimulate senses with art and meditation
  • Encourage nutritious family meals (no cooking required!)
  • Ground physical self with natural environment

Psychosocial
Health

  • Deepen support system with group discussion
  • Build connections with other patients and families
  • Cultivate friendships among peers
  • Benefit from ongoing support beyond the respite

Emotional
Health

  • Foster listening and sharing in a safe space
  • Validate positive and negative emotions
  • Practice gratitude
  • Encourage adaptability

Spiritual
Health

  • Discover purpose in the journey
  • Embrace faith and hope
  • Nourish mind, body and spirit well-being
  • Explore ritual for prayer and reflection

Financial
Health

  • Participate in cost-free respite programming
  • Connect with beneficial resources
  • Recharge for continued employment
  • Mitigate financial duress caused by diagnosis

Family Health

  • Strengthen family unit
  • Improve communications
  • Promote connectedness
  • Inspire team mentality

Mental Health

  • Reduce anxiety and stress
  • Boost coping skills
  • Find inspiration and encouragement
  • Build resilience and future treatment

Physical Health

  • Promote movement and exercise
  • Stimulate senses with art and meditation
  • Encourage nutritious family meals (no cooking required!)
  • Ground physical self with natural environment

Psychosocial Health

  • Deepen support system with group discussion
  • Build connections with other patients and families
  • Cultivate friendships among peers
  • Benefit from ongoing support beyond the respite

Emotional Health

  • Foster listening and sharing in a safe space
  • Validate positive and negative emotions
  • Practice gratitude
  • Encourage adaptability

Spiritual Health

  • Discover purpose in the journey
  • Embrace faith and hope
  • Nourish mind, body and spirit well-being
  • Explore ritual for prayer and reflection

Financial Health

  • Participate in cost-free respite programming
  • Connect with beneficial resources
  • Recharge for continued employment
  • Mitigate financial duress caused by diagnosis

FPS Role in Integrative Oncology

FPS has created endpoints of well-being that relate to every health pillar in the FPS Family Health Model. Every hour on respite is meaningful and produces measurable outcomes. Here’s a breakdown of what is currently provided to a family while on Travel Respite.

608 Transformative Hours

Provided to each FPS family on travel respite

124 Hours

Family Health

  • Family fun games
  • Daily meals together
  • Bonfire and other gatherings
  • Comedy and entertainment
  • Nightly chit chats

70 Hours

Mental Health

  • Chair yoga and meditation
  • Reflective stillness
  • Art therapy
  • Journaling and prompts
  • Nature walks

35 Hours

Physical Health

  • 14 Balanced meals served to each respite recipient
  • Nutrition education
  • Water therapy
  • Access to gym and fitness classes

72 Hours

Psychosocial Health

  • Community connections
  • Team encouragement
  • Community Woodloch activities: Escape room, boat build, comedy and magic shows

28 Hours

Emotional Health

  • Chair yoga and meditation
  • Family mealtime/bonding
  • Journaling and prompts
  • New connections formed
  • Accomplishing adventures
  • Anticipatory excitedness

18 Hours

Spiritual Health

  • Prayerful reflection and stillness
  • Chair yoga and meditation
  • Journaling and prompts
  • Shared faith experience

261 Hours

Financial Health

  • Cost free respite experience
  • Supplemental cash contributions
  • Financial education
  • No stress planning

Respite Reinforced

For families in the FPS program, we offer support beyond the respite that assists them as their journey with cancer continues. This support continues to address our seven health pillars and comes in many forms. Below, we highlight three of our major initiatives that reinforce respite each year for our families!

Holiday
Program

Holiday Program

holidayprogram

FPS partners with corporations, individuals, and Take a Break Clubs to provide holiday cheer to FPS Families experiencing financial duress and/or the loss of a spouse or parent. Volunteers then deliver gifts to these families, ensuring their financial and emotional health is boosted during the holiday season.

FPS
Family Events

FPS Family Events

familyevents

We provide at least three complimentary events each year to bring together our Respite Recipients and members of our donor and volunteer community! Our annual Beach Day, Cornhole Tournament, and Pancakes for Pete Family Reception allow us to take a break together and experience a boost in psychosocial, emotional and family health.

Carry on Club and Bereavement Resources

Carry on Club and
Bereavement Resources

carryonclub

For some, the acceptance and management of grief is part of their family’s respite journey. Our resources impact spiritual, emotional, psychosocial and family health. We offer peer to peer support with our Carry on Club, a social club for widows and widowers in our Respite Program, and provide reminders of hope like our annual “angel” mailing which includes handmade angel ornaments sent to grieving FPS families.

Who We Serve

Cancer touches us all; FPS unites families through respite and gives them a community to grow with, lean on and learn from, forever. 

For Pete’s Sake serves cancer patients, ages 21-55, their caregivers and their children who reside in PA, NY, NJ, DE or MD.

More information can be found on our Demographic Matrix.

Health Disparities

  • 77% of the FPS patients are advanced stage.
  • FPS serves all cancer types and is not limited to terminal diagnosis.
  • 33% of Respite Recipients identify as a minority.
  • We offer our program nomination materials in English and Spanish.

Financial Insecurity

  • 83% of the families nominated into the program are designated as in financial duress by their nominators.
  • An investment of $1,743,000 per year for the Respite Experiences at no cost to the Patient or his or her family.
  • 3,024 days annually for a family in a safe and secure respite environment that promotes healing.

Food Insecurity

  • 48 balanced meals provided per family per Travel Respite.
  • 6,048 meals per year on Travel Respites.
  • 18,144 hours of dedicated meal time annually for families gathered around the table.

Our Mission in Action

At 40 years old, Joseph faced a difficult diagnosis. He served 15 years as a Marine and was medically retired. He and his family were looking forward to a nice, retired life, until he received a diagnosis of terminal cancer. Their FPS Travel Respite was a chance to return to normalcy, even if just for a little while. We are honored to serve a family that has given so much to serve our country!

joseph-on-respite
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Our Future Impact on Integrative Oncology

Designed using 18 years of qualitative and quantitative outcome data from thousands of FPS participants and with input from oncology professionals, our Program Outcome Measures collected since the start of community respites at Woodloch statistically demonstrate the impact of respite on the patient, caregiver and their loved ones.

We envision the nation’s first Cancer Respite Center at Woodloch Resort, where every space lends for transformative experiences that will change the continuum of care for cancer patients.

Dedicated spaces, including an art studio, pool, play areas, chapel and nature trails, provide backdrop for enhanced benefits.

Lounges, dining room and campfire rings provide settings for collaborative conversation both within the family unit and with other families so that enhanced communication and deeper connections are mainstays in ongoing support during the cancer journey.

This respite center will allow our mission to reach an increasing amount of people each year, providing support connected to our seven health pillars on a grand scale.

Utilizing the Cancer Respite Center, We Will Provide 466,944 Transformative Respite Hours Annually!

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Family Health Hours
0
Mental Health Hours
0
Physical Health Hours
0
Psychosocial Health Hours
0
Emotional Health Hours
0
Spiritual Health Hours
0
Financial Health Hours
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Total Yearly Hours